NEWBORN SCREENING FOR KRABBE DISEASE.

View NCGA Bill Details2013-2014 Session
Senate Bill 572 (Public) Filed Monday, April 1, 2013
A BILL TO BE ENTITLED AN ACT TO REQUIRE THE COMMISSION FOR PUBLIC HEALTH TO ADOPT RULES REQUIRING SCREENING FOR KRABBE DISEASE UNDER THE NEWBORN SCREENING PROGRAM ADMINISTERED BY THE DEPARTMENT OF HEALTH AND HUMAN SERVICES; TO INCREASE THE LABORATORY FEE FOR NEWBORN SCREENING TESTS PERFORMED BY THE STATE LABORATORY OF PUBLIC HEALTH TO ACCOMMODATE THE COST OF THIS NEW SCREENING REQUIREMENT; TO REQUIRE HEALTH BENEFIT PLANS TO COVER TESTING FOR KRABBE DISEASE; AND TO APPROPRIATE FUNDS TO THE DEPARTMENT OF HEALTH AND HUMAN SERVICES TO IMPLEMENT THIS NEW SCREENING REQUIREMENT.
Intro. by Randleman.

Status: Ref to Health Care. If fav, re-ref to Appropriations/Base Budget (Senate Action) (Apr 2 2013)
S 572

Bill Summaries:

  • Summary date: Apr 1 2013 - More information

    Requires the Commission for Public Health to amend the rules implementing the Newborn Screening Program to require screening for Krabbe disease.

    Amends GS 130A-215 to increase the fee for lab tests performed by the State Laboratory of Public Health for newborn screenings from $19 to $21.12. Effective July 1, 2013.

    Enacts new GS 58-3-261 to require health benefit plans to provide coverage for Krabbe disease screenings. Effective on the date that the rules adopted by the Commission for Public Health become effective, and applies to health benefit plans entered into, amended, or renewed on or after that date.

    Appropriates $694,000 for 2013-14 from the General Fund to the Department of Health and Human Services, Division of Public Health to cover the costs of equipment and lab information management system programming necessary to implement the requirement for Krabbe disease screening. Effective July 1, 2013.


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