Bill Summary for H 823 (2015-2016)

Printer-friendly: Click to view

Summary date: 

Jun 30 2015

Bill Information:

View NCGA Bill Details2015-2016 Session
House Bill 823 (Public) Filed Tuesday, April 14, 2015
AN ACT ESTABLISHING AN ADVISORY COUNCIL ON RARE DISEASES WITHIN THE SCHOOL OF MEDICINE OF THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL.
Intro. by Carney, Avila, Earle.

View: All Summaries for BillTracking:

Bill summary

Senate committee substitute makes the following changes to the 1st edition.

Places the Advisory Council on Rare Diseases (Council) within the UNC-Chapel Hill School of Medicine instead of the Department of Health and Human Services and makes conforming changes. Specifies that the Council will also advise the Governor and the General Assembly on issues related to rare diseases. Amends the membership of the Council. Sets member terms at three years and prohibits serving more than two consecutive terms. Changes the method for determining the chairperson. Limits the Council's powers and duties to: (1) advising on coordinating statewide efforts for the study of the incidence of rare diseases in the state and the status of the rare disease community; and (2) reporting to the Secretary, Governor, and Joint Legislative Oversight Committee on Health and Human Services by January 1, 2016, and annually thereafter, on the council's activities, and its finding and recommendations on rare disease research and care in the state. Requires all appointments to the Council to be made no later than 30 days after the effective date of the act. 

Changes the act's effective date from July 1, 2015, to August 1, 2015.

Changes the act's long title.